Cwestiwn ysgrifenedig WQ85346
- Gofynnwyd gan
- Russell GeorgeCeidwadwyr
- I'w ateb gan
- Minister for Health and Social Services
- Cyflwynwyd
- Dyddiad ateb
- Atebwyd
- Amser i'w ateb
- 13 diwrnod
Cwestiwn
Mae'r cwestiwn a'r ateb yn Saesneg gan nad oes fersiwn Gymraeg ar gael.
What information does the Welsh Government have about the prevalence of XLH (X-linked hypophosphataemia)?
Ateb
Atebwyd gan Minister for Health and Social Services
The Welsh Government does not hold this information. However, information about this condition at a European level is available on the Orphanet Portal, which indicates a prevalence of about 1 in 20,000:
Orphanet: X linked hypophosphatemia
We have, together with the other governments in the UK, published a Rare Diseases Framework which will help people with rare conditions to access earlier diagnoses and treatments. There will be a Welsh plan to implement the framework in Wales.
UK rare diseases framework | GOV.WALES